Hannah

What is your age and gender?

Female and I am 11

What is your liver condition?

I have Biliary Atresia

How old were you when you was diagnosed?

I was 18 months or 1&1/2 years old

How did you feel?

I can't remember it but I feel sad hearing about it

How were you told?

My mum and dad told me what happened and showed me the photos

How does it affect you?

I can't go to sleep over’s at my friend’s birthday parties because of my medicines

Are you on any medicines?

Of course, I am on Prednisone and Tacrolimus

How often do you go to appointments?

I go twice a year, once at Swindon and once at Kings College Hospital

How are you treated there?

The professors, doctors and nurses are all really kind and understanding. Also they are always happy to help you and answer your questions

Does anything worry you about having a liver condition?

It worries me that you don't know what’s going to happen and if you are going to have another operation

Have you got any messages for other young people with a liver condition?

Just because you are different from most other people doesn't make you weird. It makes you just as special as everyone else and don't ever ever forget it

Any other comments...

Sometimes when I feel upset about my condition I want to tell my friends but they don't understand because they don't know what it's like. If you are in the same position then I learnt that I should tell my parents or the doctors. I hope reading this has helped you