Jace

What is your age and gender?

I'm 16 and Male

What is your liver condition?

I have Auto Immune Liver Disease - Sclerosing Cholangitis, I also have Ulcerative Colitis

How old were you when you was diagnosed?

I was 7 years old

How did you feel?

I can’t remember a lot, except the fact I was really ill and spent time in hospital before I was diagnosed

How were you told?

I was told by the Doctors after lots of tests

How does it affect you?

Until about six months ago my symptoms were non existent after just under ten years of being well.
Recently I have had a relapse and am finding school work and my GCSEs hard work

Are you on any medicines?

I’m on Ursodeoxycholic Acid and Azathioprine

How often do you go to appointments?

I go every three months between my local hospital and my specialists in Birmingham

How are you treated there?

My doctors are very descriptive and explain things well and in a way I can understand

What are the good and bad things about having a liver condition?

There is nothing good about having a liver condition, as it is making my life difficult and is affecting my future as I am struggling to keep up with school work at an important time

Does anything worry you about having a liver condition?

I think about how well I am going to be in the future and how it is going to affect my life in the long run

Have you got any messages for other young people with a liver condition?

After being in hospital seeing seriously ill newborn babies, it’s made me think that there is always going to be some one worse off