Sadie

What is your age and gender?

I'm 14 and female

What is your liver condition?

I have got Autoimmune Liver Disease, Sclerosing Cholangitis and IBS

How old were you when you was diagnosed?

I have had pain since I was around 6 years old, and was diagnosed when I was 10

How did you feel?

It makes me feel upset and down

How were you told?

The doctors told me and my mum in a hospital

How does it affect you?

It affects me as I don’t have enough energy to walk as much as other people I miss out on a lot of activities

Are you on any medicines?

Yes. The most I had in a day is 16

How often do you go to appointments?

I go every 4 weeks lately

How are you treated there?

They just look at my blood test results…. if it is good they lower the tablets if it’s bad they give me more tablets

What are the good and bad things about having a liver condition?

I dont know

Does anything worry you about having a liver condition?

What will happen in the future?

Have you got any messages for other young people with a liver condition?

Just hang in there you’re going to be ok