Madalyn

What is your age and gender?

I'm 12 and female

What is your liver condition?

I have Alpha-1 Antitrypsin Deficiency

How old were you when you was diagnosed?

I was 2 weeks old

How did you feel?

I didn’t really know about it and I don’t remember

How were you told?

The doctors told my mum and dad after some tests

How does it affect you?

It doesn’t affect me much; I’m lucky it’s not bad at the moment. It was bad when I was little; I have a slight yellow tint on my teeth

Are you on any medicines?

Yes lots of vitamins :)

How often do you go to appointments?

I go for appointments every year or two and check ups at the local doctors every now and then

How are you treated there?

I get tests (injections) and I get weighed, I have had biopsies in the past

What are the good and bad things about having a liver condition?

The good things are that it means you can meet lots of people through having it and it makes you aware.
The bad things are that its life threatening and it gets annoying taking medication every day

Does anything worry you about having a liver condition?

I worry about it getting any worse but I cant worry I need to live life to the full :)!

Have you got any messages for other young people with a liver condition?

I have made friends with lots of other people!

Any other comments...

Keep Strong Guys :) x