A) You certainly can, contact CLDF’s young person’s officer and they will help you. We’ve lots of leaflets and information that we can email or post to you. It’s a great chance to educate your school about liver diseases and CLDF.
A) If you are on the liver transplant list it really is a waiting game. It’s important that your school knows about your situation so they can support you. Arrangements can be made for you to have home tuition or teaching at school- if necessary you can even do exams at the hospital school. Talk to someone from your hospitals CNS team for more information.
If you have missed too much school then it is possible to re-sit your exam at a later date, or take the school year again. Some schools have been known to submit mock exam results in certain circumstances.
A) There are certain conditions to getting a home tutor, so in order to get the ball rolling mention it at your appointment, or contact a specialist nurse or social worker at your liver hospital and they will advise you if you need to do anything, and what they can do to help as they may need to contact the school on your behalf to provide your medical information.
A) The best thing to do would be to ask at your hospital but not get your hopes up. But maybe this is something you can do perhaps….CLDF would be more than happy to help you put a presentation together and send you as much information as you need.
A) Although two children a day are diagnosed with a liver disease in the UK, it’s still rare and they may not have met anyone with a liver condition before. It’s no excuse but they probably don’t know about your condition and don’t understand how it makes you feel.
It’s fantastic that you want them to know more, and there are a few things you or your school could do: arrange a Big Yellow Friday fundraising event, you or a teacher could do a notice board about liver conditions and you could ask for an assembly or lesson on liver conditions. CLDF can help you with this.
