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Living with liver disease

Growing up can be a difficult time for all young people and living with a liver condition or a transplant can bring additional challenges. There are some extra things you may need to think about and this is included in this part of the site.

The age at which you were diagnosed may affect what you know and how you feel about your liver. Very typically:

• If you were diagnosed as a baby or a young child and had treatment (including a transplant), it’s common to remember and feel nothing at all about any illness or treatment. It’s not unusual for young people in this situation to find it hard to accept (or even understand) that, although you feel well, you need to continue going to hospital appointments, taking your medicines and following your doctor’s advice.
  
  
• If you were diagnosed as a teenager and felt well up until diagnosis or only recently became unwell, you may find it hard to adjust to (or even resent) your new routines and life style such as attending appointments, taking your medicines or following your doctor’s advice. Or you might feel the exact opposite if treatment has made you feel a whole load better

There are several ways you can find out more about living with a liver disease. You can email Laura - our young persons officer, click on the buttons below, or have a look at the CLDF reflection sheets to help you explore how you feel about your liver disease.

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